Last week I wrote about the problem we were having with Dyl constantly running slightly high (Trends Don't Lie). As a result, we upped a couple of basal rates in the hopes that it would at least curb the 2 daily spikes he was experiencing. And we were right, it did combat the spikes. However, it still left him elevated throughout the day, all day.
Fast forward to today, when we were back at the diabetes education center for a check-up. In addition to doing Dyl's quarterly A1c, weighing and measuring him, and talking about changes and updates in diet and exercise routine, the endocrinologist took a really hard look at Dyl's pump data and decided to make some pretty substantial changes. In fact, she increased every single basal rate. Background note: Dylan has six different basal rates which vary considerably at different times of day. For example, because he is prone to hypoglycemic seizures in his sleep, he takes less insulin at night. For some reason, which we really have no idea, he requires more than twice the amount of insulin between 2:30pm and 6:00pm than he does at any other time of day. The other 4 rates fall somewhere in between. (This ability to vary insulin delivery over a 24 hour period is one of the MANY reasons I love pumping over MDI.)
I've said this before, and I'll say it again and again: I love our endo and I trust her explicitly. So when she says increase all the basal rates, I do it. And I did, but not without fear. This is, by far, the most drastically we have ever altered Dylan's settings, and a couple of the settings were increased by as much as 0.2 units per hour. In an MDI user that injects insulin two or three times a day, 0.2 units may not seem like much, but in an 11 year old pumper, who boluses additional insulin for food, it's a lot. Fingers crossed that these changes get his bg levels back into ideal range, at least most of the time.
Random thoughts and reflections on life, food, and exercise, while raising a child with Type 1 Diabetes.
Thursday, 18 October 2012
Wednesday, 17 October 2012
Wordless Wednesday ~ Signs of...
Driving to work yesterday, I was struck by the stunning color of the leaves on this tree. So much so, that I stopped and took a picture. Fall has definitely arrived. And while fall is perhaps my least favorite season (because in Vancouver it rains pretty much every day in fall), fall means Diabetes Awareness Month in November!!
Monday, 15 October 2012
Big Blue Test!
It's back! Once again, the Diabetes Hands Foundation is running the Big Blue Test, from Oct 14th to Nov 14th. Participate and help those around the world with diabetes in need.
How Does it Work? Simply test your blood sugar, exercise for 14-20 minutes, test again, and fill out the super-simple form on the Big Blue Test website. It's that easy! Don't have diabetes? No problems, simply track your exercise only!
Why? The average person participating in the Big Blue Test sees a reduction in their blood glucose level of 20% after 14-20 minutes of exercise. And if that's not enough reason to get you motivated, how about this? Every test gets the Diabetes Hands Foundation one step closer to their goal of 20,000 entries.And if they achieve 20,000 entries, Roche Diabetes Care will donate $100,000 to organizations that provide supplies and services for people with diabetes in need.
Quick, easy, and effective. This is a no-brainer. Test today. Test every day between now and November 14th.
How Does it Work? Simply test your blood sugar, exercise for 14-20 minutes, test again, and fill out the super-simple form on the Big Blue Test website. It's that easy! Don't have diabetes? No problems, simply track your exercise only!
Why? The average person participating in the Big Blue Test sees a reduction in their blood glucose level of 20% after 14-20 minutes of exercise. And if that's not enough reason to get you motivated, how about this? Every test gets the Diabetes Hands Foundation one step closer to their goal of 20,000 entries.And if they achieve 20,000 entries, Roche Diabetes Care will donate $100,000 to organizations that provide supplies and services for people with diabetes in need.
Quick, easy, and effective. This is a no-brainer. Test today. Test every day between now and November 14th.
Friday, 12 October 2012
Trends Don't Lie
Up and down, up and down. Just when I think I have pump rates set so that "in range" is a reasonable goal for the immediate future, diabetes goes and changes everything again. Call it Murphy's Law, call it karma, call it whatever you want, I call it living with diabetes. At it's best, it's manageable; at it's worst, it's a roller coaster, but it's always uncontrollable. And the more we try to control it, the more elusive that control becomes.
After some pretty decent bg readings for most of September, we have seen some consistent highs for the first half of October. And not "high" highs, which are so much easier to correct, in my opinion, with a nice, big, well-measured bolus. No, we've been dealing with what we call "low" highs in our house - those pesky high blood sugar levels that don't appear to be have an obvious cause. The ones that hover just a little above the "ideal" range; too low to continually correct, to high to ignore. The 11's were our battle for Thanksgiving. Not just one, not two, not even three, but a solid 48 hours of blood glucose readings ranging from 11.0 mmol/l (198 mg/dl) to 11.5 mmol/l (207 mg/dl). Furthermore, Dylan felt fine. He didn't feel high and wasn't showing any symptoms of hyperglycemia. It didn't seem to matter what he ate, or how many times we corrected the highs, the next reading was another 11. We changed infusion sets, tried a new vial of insulin, double checked against multiple meters and the result was still the same...11s. It became a bit of joke with Dyl after a while, as he'd test and then say to himself, while waiting for the number to appear on the meter screen, "anything but 11."
What does one do in that situation? Personally, I am always hesitant to adjust basal rates because so many things can cause a temporary increase in blood glucose levels. Maybe Dylan was under a bit of stress, or fighting the early stages of a virus. Perhaps he had a decreased amount of exercise for that 48 hour period. Or maybe it's the beginning of puberty - something I've been dreading, from a diabetes standpoint, for a while now. The point is, it's so hard to determine what causes a rise in bg, that basal adjustments are not always the best answer.
So I did what I usually do in this situation, after I've tried the obvious solutions (bolus, increased water, bout of exercise, infusion set change, new insulin, different meter) and haven't seen success - I look to the numbers to tell me. After all, numbers don't lie. And while a single number, or even a day's worth of data, can't always provide a clear picture, trends over time can reveal a lot. So I sat down at the computer, uploaded the last two weeks of pump data, and stared long and hard at the information, looking for trends, patterns, or anything that would shed light on the situation. Sure enough, I quickly discovered a number of problems. Twice during the day, for the past 2 weeks, Dylan's bg levels had been quite elevated (prior to the 2 days of 11's). It was always at the same time each day, and always a similar level of elevation. So I increased the basal rates for the few hours prior to those 2 times, in the hopes that it would help to curb the spike.
I then texted the endocrinologist to let her know that I had uploaded new data, and increased two of Dylan's six basal rates. I also asked if could she please let me know if any other changes were required. Yup, after almost 7 years of parenting a child with diabetes, I still ask the endo about every change to pump settings. And I probably always will.
After some pretty decent bg readings for most of September, we have seen some consistent highs for the first half of October. And not "high" highs, which are so much easier to correct, in my opinion, with a nice, big, well-measured bolus. No, we've been dealing with what we call "low" highs in our house - those pesky high blood sugar levels that don't appear to be have an obvious cause. The ones that hover just a little above the "ideal" range; too low to continually correct, to high to ignore. The 11's were our battle for Thanksgiving. Not just one, not two, not even three, but a solid 48 hours of blood glucose readings ranging from 11.0 mmol/l (198 mg/dl) to 11.5 mmol/l (207 mg/dl). Furthermore, Dylan felt fine. He didn't feel high and wasn't showing any symptoms of hyperglycemia. It didn't seem to matter what he ate, or how many times we corrected the highs, the next reading was another 11. We changed infusion sets, tried a new vial of insulin, double checked against multiple meters and the result was still the same...11s. It became a bit of joke with Dyl after a while, as he'd test and then say to himself, while waiting for the number to appear on the meter screen, "anything but 11."
What does one do in that situation? Personally, I am always hesitant to adjust basal rates because so many things can cause a temporary increase in blood glucose levels. Maybe Dylan was under a bit of stress, or fighting the early stages of a virus. Perhaps he had a decreased amount of exercise for that 48 hour period. Or maybe it's the beginning of puberty - something I've been dreading, from a diabetes standpoint, for a while now. The point is, it's so hard to determine what causes a rise in bg, that basal adjustments are not always the best answer.
So I did what I usually do in this situation, after I've tried the obvious solutions (bolus, increased water, bout of exercise, infusion set change, new insulin, different meter) and haven't seen success - I look to the numbers to tell me. After all, numbers don't lie. And while a single number, or even a day's worth of data, can't always provide a clear picture, trends over time can reveal a lot. So I sat down at the computer, uploaded the last two weeks of pump data, and stared long and hard at the information, looking for trends, patterns, or anything that would shed light on the situation. Sure enough, I quickly discovered a number of problems. Twice during the day, for the past 2 weeks, Dylan's bg levels had been quite elevated (prior to the 2 days of 11's). It was always at the same time each day, and always a similar level of elevation. So I increased the basal rates for the few hours prior to those 2 times, in the hopes that it would help to curb the spike.
I then texted the endocrinologist to let her know that I had uploaded new data, and increased two of Dylan's six basal rates. I also asked if could she please let me know if any other changes were required. Yup, after almost 7 years of parenting a child with diabetes, I still ask the endo about every change to pump settings. And I probably always will.
Labels:
blood glucose,
diabetes,
Dylan,
hyperglycemia,
pump
Sunday, 7 October 2012
Tuesday, 2 October 2012
BSC Wins Award!
KwikMed, a leading health care provider with a profession, modern approach to healthcare, is one of just two fully licensed online pharmacies in the USA.
Last week, KwikMed recognized 20 diabetes related website/blogs for their excellence in contributing editorial content to the diabetes community. After reviewing hundreds of sites, the specialist panel of judges selected Blood, Sweat & Carbs as one of the 20 diabetes sites to receive this award!
I am so flattered to be included on KwikMed's list! For a full list of recipients, visit: http://www.kwikmed.org/20-star-quality-diabetes-information-sites/
Monday, 1 October 2012
What if it All Came Crashing Down?
So I checked out. On blogging, on life, and on myself. I've stretched myself too thin for too long, so I forced myself to step back and really evaluate my life. I asked questions, about what I want, what's important to me, and what things are not worth my time. Where do I want to be in six months, in a year, in five years? What do I truly want for my family, and for myself? Asking questions like these can be hard, because the answers are not always what we want to hear. But if I'm to get to where I want to be, I need to make some sacrifices, and focus on the things that will help me achieve my goals.
So more negativity. No more living in the past. No more worrying about, or even thinking about, trivial things. It's time to focus on what matters. On the positive, on the meaningful, and on making the most of each and every day.
Labels:
emotional health,
obstacles
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